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O+ Kidney Needed for 33yo CDN on HD (Read 821 times)
angieskidney
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O+ Kidney Needed for 33yo CDN on HD
06/14/07 at 05:59:11
 
I live in Ontario and my transplant hospital is a bit of a drive to London Ontario. I have been waiting on the list now since early 2001. I used to work a 12-hr shift job for 9 years and had just gotten the promotion I always wanted when I lost my kidney transplant and was forced to turn down that opportunity and apply on disability which was a 9 month wait. I ended up having to claim bankruptcy and had to move out of the house I was renting and go into a "Geared-to-income" housing building. It has been hard and I get discouraged a lot! Especially when it comes to the thought of marrying my fiance! We both have no money and it all falls on him as I can't really bring in any profit. He is going to be 40 this year and we would like to start a family before I am 40.  
 
Our relationship is difficult only because of distance since I stopped going out once I got sick and stayed home on the computer. My boyfriend at the time was always in online games and soon I was since I had nothing else to do between dialysis. Eventually we broke up and I met my fiance through the games. I never thought I would ever meet anyone online since I have never been to a dating site in my life. Whoever thought games were another way to meet guys!  
 
He is great with my health but I can't afford dialysis in the States so he can only come visit me in Canada where dialysis is covered. He wants to move here but again that cost all falls on him. I really feel helpless in this and can't wait til I can get a transplant.  
 
My mom was tested but she was turned down even though a perfect match because they told her that her function is now high enough to be able to give up a whole kidney and not ever have to end up on dialysis. There is no one else in my family who can be tested and my fiance is type B blood. I need O+.  
 
I have also posted in another Registry here.
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« Last Edit: 06/17/07 at 10:24:09 by angieskidney »  
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angieskidney
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Re: O+ Kidney Needed for 33yo CDN on HD
Reply #1 - 09/01/07 at 03:26:16
 
Quote from angieskidney on 06/14/07 at 05:59:11:

I have also posted in another Registry here.

A girl contacted me from that link but is going to donate to someone she has known for 10 years. I agreed that would be the better choice so I still don't have a donor. She has told me about a guy I could ask but I don't want to put him on the spot. Right now my health is stable so I don't mind the wait for now..
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angieskidney
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Re: O+ Kidney Needed for 33yo CDN on HD
Reply #2 - 11/09/07 at 16:07:38
 
I have received my transplant on Sept 30th 2007 .. but bad news .. it still isn't working .. even almost 6 weeks later ..  
 
At first they called it a sleepy kidney but after 4 biopsies in 5 weeks (no rejection ever found) they have finally given up on the kidney ever working and have put me back on full time dialysis..  
 
Just goes to show you .. not all transplants work .. Sad  cry
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angieskidney
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Re: O+ Kidney Needed for 33yo CDN on HD
Reply #3 - 01/25/08 at 09:36:02
 
I go back to London Hospital for a checkup this coming Monday (it is Friday today) but so far it looks like the kidney is working almost fully! Haven't had to do dialysis now for over 2 months (took 7 full weeks to just start working) but still am extremely tired as the kidney is not making any Epo yet. So I have to give myself needles in my belly subcutaneously. Also my phosphate is still on the high side of what a person with a working kidney should be even though better than when I was on dialysis. So I still take phosphate binders. Mine have calcium which is good as I don't have any Parathyroids. I also have to be on high doses of Vitamin D for life along with Calcium.  
 
The Nephrologist said that with as low as my creatinine is right now (not the best but not that bad .. it keeps coming down so we are happy) that he hopes my kidney will start to make Epo in the next 3 months. Then I will finally feel better than I did on dialysis. Right now I do not yet.
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