I live in Ontario and my transplant hospital is a bit of a drive to London Ontario. I have been waiting on the list now since early 2001. I used to work a 12-hr shift job for 9 years and had just gotten the promotion I always wanted when I lost my kidney transplant and was forced to turn down that opportunity and apply on disability which was a 9 month wait. I ended up having to claim bankruptcy and had to move out of the house I was renting and go into a "Geared-to-income" housing building. It has been hard and I get discouraged a lot! Especially when it comes to the thought of marrying my fiance! We both have no money and it all falls on him as I can't really bring in any profit. He is going to be 40 this year and we would like to start a family before I am 40.
Our relationship is difficult only because of distance since I stopped going out once I got sick and stayed home on the computer. My boyfriend at the time was always in online games and soon I was since I had nothing else to do between dialysis. Eventually we broke up and I met my fiance through the games. I never thought I would ever meet anyone online since I have never been to a dating site in my life. Whoever thought games were another way to meet guys!
He is great with my health but I can't afford dialysis in the States so he can only come visit me in Canada where dialysis is covered. He wants to move here but again that cost all falls on him. I really feel helpless in this and can't wait til I can get a transplant.
My mom was tested but she was turned down even though a perfect match because they told her that her function is now high enough to be able to give up a whole kidney and not ever have to end up on dialysis. There is no one else in my family who can be tested and my fiance is type B blood. I need O+.
I have also posted in
another Registry here.